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文| 愛德仁協會

有鑒於國內相當缺乏在照護成人肯納症方面的技術與方法,也缺乏專為成人肯納症而設立的安養機構,因此結合四方有心人士的規劃與鼓勵下在20092月正式成立社團法人宜蘭縣愛徳仁協會及貓頭鷹工作坊,想要補強國內在這一方面的空缺。

剛開始我們先以俊余為對象,除了每天讓他畫圖外,我們也安排其他工作或活動並採取監控的方式,從旁觀察與俊余每天互動的過程,將他內心情緒的反應及行為舉止做成紀錄。過去俊余因為表達能力與社交能力較差,無法完整正確說出自己的情緒與感覺,因而常造成心理上的挫折,偶有肢體動作出現,還一度被列為特殊人物。有幸從蔡逸周教授的研究理論中,我們知道不需要把肯納症當成是病人的方式來對待,而且肯納症是天生而不是後天造成的,他們應該被看成有「隱藏的天分」的獨特的人;通常肯納症者的負面行為都是有原因的,大都是當下自己遇到的挫折或溝通不良所造成的,他們無法處理心中不滿的情緒。

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願景:

         建構成年肯納症者安全、自在的生活家園。

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I am very pleased to hear that 宜蘭縣愛德仁協會 is going to celebrate its establishment today. As we all know that there are many programs or services already being developed to serve children with 肯納症. However, there is a lack of programs or services that are developed to serve adolescents and adults with肯納症. While I personally have begun to help the societies to rethink that 肯納症 is NOT a “disorder,” the reality is that our society is not ready to accept such individuals as just a minority group living in our society. Hence, these individuals being labeled as having 肯納症 are facing tremendous daily difficulties and hardship. Without special supports and helps, these individuals, particularly those who are out of the school programs are living a miserable life every day.   

Some evidences from other countries have shown that these individuals with adequate training and support are capable of learning to live relatively normal daily routines and to work on certain jobs. It is hope that 宜蘭縣愛德仁協會 will be the first agency that proves we have been wrong for many years and that these individuals can be just like us and also can significantly contribute to our society.

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恭喜愛德仁協會的創立,由衷深表慶賀之意。

 

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